A mother is fighting to get cannabis treatment for her son in a last-ditch attempt to give him a better quality of life after NHS drugs failed to work on his rare form of epilepsy.
Sarah Sugden’s three-year-old son Isaac has a rare gene mutation which has caused severe refractory epilepsy, which is aggressive and has not responded to medication.
Ms Sugden said Isaac was now on his 13th anti-epileptic drug on the NHS but so far none of them had worked.
“Doctors have told us there is no other option now and he is not suitable for surgery for an implant which may have helped,” she told i. “Cannabis medication is the last treatment we can possibly try.”
Ms Sugden, of Kingston-upon-Hull, East Yorkshire, said she had first noticed something was wrong when Isaac was around six months old as he was not meeting milestones and his development was delayed. At 11 months old, he could not sit up unaided, didn not have good head control and barely slept.
Isaac was diagnosed with global development delay, but began suffering from seizures and was diagnosed with a rare gene mutation – med12 – which has caused severe refractory epilepsy. He has around 30 to 80 seizures a day.
Ms Sugden said that as well as trying different anti-epileptic drugs available from the NHS, she had tried putting Isaac on the low-carb, high-fat ketogenic diet which has…
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A mother is fighting to get cannabis treatment for her son in a last-ditch attempt to give him a better quality of life after NHS drugs failed to work on his rare form of epilepsy.
Sarah Sugden’s three-year-old son Isaac has a rare gene mutation which has caused severe refractory epilepsy, which is aggressive and has not responded to medication.
Ms Sugden said Isaac was now on his 13th anti-epileptic drug on the NHS but so far none of them had worked.
“Doctors have told us there is no other option now and he is not suitable for surgery for an implant which may have helped,” she told i. “Cannabis medication is the last treatment we can possibly try.”
Ms Sugden, of Kingston-upon-Hull, East Yorkshire, said she had first noticed something was wrong when Isaac was around six months old as he was not meeting milestones and his development was delayed. At 11 months old, he could not sit up unaided, didn not have good head control and barely slept.
Isaac was diagnosed with global development delay, but began suffering from seizures and was diagnosed with a rare gene mutation – med12 – which has caused severe refractory epilepsy. He has around 30 to 80 seizures a day.
Ms Sugden said that as well as trying different anti-epileptic drugs available from the NHS, she had tried putting Isaac on the low-carb, high-fat ketogenic diet which has…
